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Understanding Patient Registries for Diabetes: A Scoping Review of Published Literature
Background: Diabetes registries have grown in prevalence and incorporated patient engagement opportunities to support diabetes management. We aimed to understand the goals, purpose, and context for diabetes registries defined as patient-focused and how people with diabetes are engaging with these registries.
Methods: We searched Pubmed, MEDLINE, Embase, and Emcare using the following criteria: (1) the population is people with diabetes mellitus, including type 1, type 2, and/or gestational diabetes; and (2) the study describes a patient focused registry.
Results: The search identified 346 citations, 9 of which were included. The goals of the registries included: developing referral systems, evaluating community-based interventions, collecting self-reported data, improving access to care, and fostering diabetes communities. The delivery settings were community-based, outpatient, or primary care. The method s of delivery and level of patient engagement varied between registries. Conclusions: This scoping review identified 9 diabetes registries, with varying goals, purposes and levels of patient engagement. It highlights a need for registries centered on people with diabetes to promote engagement and facilitate long-term diabetes self-management. © The Author(s) 2025.
Authors : Moayad L.; Alliston P.; Khalid S.; Fitzpatrick-Lewis D.; Gerstein H.C.; Sherifali D.
Source : SAGE Publications Inc.
Article Information
| Year | 2025 |
| Type | Article |
| DOI | 10.1177/23743735251314620 |
| ISSN | 23743735 |
| Volume | 12 |
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